Artism

If you’re reading this blog, you’ll know my now 15-year-old brother has autism. He is a smart, funny and cute boy, who just happens to not be able to do things other “normal” 15-year-old’s can do. He is currently non-verbal in that he cannot talk to communicate his needs. There are many things he will not be able to do that everyone else takes for granted throughout their lives.

However, we are now launching something for him and by him. What is it?

Karan’s school has this program to get its students to become self-sufficient in something they could potentially make their livelihood. While some students are capable of doing admin work, like filing, photocopying and entering data into forms and things like that which could get them jobs in offices/hotels/banks, Karan isn’t up to that level. His work will mostly be of the artisan kind, and right now he’s doing very well in two things: painting and jewellery-making.

Right now, we’ve started off with making jewellery. I’ve had the very experienced Debbie (@GeordieArmani) have a look at initial pieces and she’s been very helpful with suggestions on how to improve and moving forward.

I’ll be putting up some pics of stuff he’s done, and will create a Facebook page soon to get more people interested in the know, and will hopefully be present at future ARTE (Artisans of the Emirates) events.

Today, I present to you: Artism.

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Going for Karan’s first exhibition

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July 28, 2011, a Thursday evening saw myself, Mom and Karan heading down to Farjam Collection gallery at DIFC. Karan was at the START art camp, and the gallery was hosting an exhibition of all the work the kids had done. Alongside the works of the START kids, were the paintings of children who had attended the Art camp as well.

Here’s a look at Karan’s work that was on exhibit; he also did the painting splotches in the lower right hand corner in the fifth pic in this gallery.

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Some of the other things at the gallery that caught my eye:

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Karan’s work on exhibit

Just a quick update to tell our readers that we’ve been told Karan’s paintings will be on display at an exhibition at the Farjam Collection Gallery at DIFC, tomorrow evening from 6pm onwards.

Trying to get confirmation on whether it’s just for a day, or will go on for a few more. The work on exhibit will be the ones he worked on while attending the Tuesday START workshops. Paintings from other participants at the START workshops will also be exhibited, so it will be quite an inspiring and fun exhibit I should think.

If anyone wants to come along with us tomorrow night, do let me know…would love to have you there!

Of Audi’s and art

Guest post by Adita Divecha, Karan’s mother

We’re back to Karan’s Tuesday art class at the Jam Jar.

This time, when we walked in, there were many people around. It seemed that the staff from Audi had volunteered for the day.

They wanted the children to paint cars; they had bought the small models of Audi cars and said we could dip them into the paint and roll the tyres across the paper to create painted wheel tracks.

Karan was very excited, I think because there were so many people around and they were taking photographs. He dipped the car in the paint and started making tracks on the paper. He seemed pretty excited about doing it and was pretty quick about it.

Since he doesn’t like getting paint on his fingers, I had to go wash his hands every now and then. The second time he used a paint brush but he wasn’t interested in painting cars, so he just made strokes with the brush the way he wanted to. For the third one, they gave him a sheet with an outline of the car but he didn’t want to stay in the line. He was laughing a lot and having fun.

After that, they kept large sheets of paper on the floor and had drawn a large sized Audi sports car…I think it was an R8. They asked if Karan would sit down on the floor and paint and we decided to give it a try. He was helped by one of the guys from Audi who sat with him. He painted the rear of the car dark blue and the rear shell of the car red and black and silver.

He was fine with sitting on the floor and moving his hands, as his strokes have improved.

As usual I did not take photos, and now Devina is upset because of that. The people from Audi had painted their faces and they seemed to be enjoying themselves along with the children. When we left, they gave each child one of the small car models.

Thanks to Audi and Start for the day!

The #manzilbooks update

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Bookmarks designed by Saurabh Chhabra (@2S8)

What’s happening with ManzilBooks? For those joining in now, here’s my plea to the community asking to donate books, and here’s the first #manzilbooks event we held at Wild Peeta.

Initially, the school wanted to hold their booksale in June, but haven’t hit the required 10,000 books the people helping them organise the event have requested for the sale to be held in the first place.

Where have they reached? With our donations and independent ones, they’ve passed 4,000. For this reason, they’ve decided to extend the duration of collection over the summer, and hopefully hit the target and carry out the event after the summer, and after Eid.

So…what’s happening?

I’m the contact person for pick-up points near Dubai Media City, Dubai Internet City, Emirates Hills, Greens, Meadows, Springs, Lakes, JLT, JBR, the Marina. Anastasia (@TDAllonsy) will be looking after Dubai Silcon Oasis, Dubai International Academic City (DIAC) and the surrounding areas.

Alternatively, Wild Peeta has generously donated its Dubai World Trade Centre outlet as a drop-off point. If dropping the books off there is more convenient, then please do so. Do drop me an email (autism [at] devinadivecha [dot] com) to let me know you’ve done so. There’s a collection of books people have dropped off along with these lovely bookmarks for people to have a sit-down and read while they eat (make sure you don’t drop any food or drink on the books!).

We hope you’ll spread the word…if anyone is thinking of getting rid of their books, please point them our way!

What to say and not say to a parent that has a child with Autism | Stuart Duncan

What to say and not say to a parent that has a child with Autism

Written on May 30, 2011 by Stuart Duncan

Filed Under: Autism

I’ve written quite often about how having a child with Autism forces you to have far more patience than you ever thought you could have… but there are still limits. And even though your patience levels can seem limitless for your child, you may find that you don’t have the same tolerances when it comes to others or some of the ignorant things they say, whether innocently intended or not.

There are a few lists out there of things not to say to us parents, but this is more of a list of things not to say or else you may just push us beyond the breaking point. Don’t worry though, I’ll follow it up with some things that I think would actually be nice to say.

do not say

Do not say

  • Your kid just needs proper discipline
  • My kids would never get away with that
  • What made your kid autistic? Was it something you did?

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Read the rest of the post by clicking the link above.

Really identify with this post, and I’m sure Mom will agree with me. We’ve been told some of those things many times and it really, really, really gets our goat. This is a great list of things you should and shouldn’t say to us, so pay attention!!!

Manzil’s annual concert – “I Can”

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(First picture in the slideshow was taken at the dress rehearsal a few days before the concert by @SaharLatheef. I don’t have very many pictures from the concert – I’d left my camera with my parents while I helped @shru_ the best I could with the video she was taking of the event.)

As always, Karan’s school hosts a concert for its students to participate in. I’d missed last year’s concert because I was away in UK, so I was quite excited about this year’s. It was held at the Sharjah Cultural Palace and this year was called “I Can”.

The event started off as always with a slideshow of all the students photographs, then the UAE national anthem and the Surah recitation by one of the students. After a singing performance by the students and the Best Buddies from Millennium School, Sharjah, there was a dance performance called Fire and Water. We saw two students graduating from the school this year, much to everyone’s applause and encouragement. Then we had the musical play, I Can, which was an adaptation of Helen Keller’s life. The concert ended as always, with a vote of thanks.

I always love going to these events … whether it’s their concert or their sports days (which I’ve said before). Even if you’re going through a particularly bad patch, attending these events never fails to lift spirits. It works for me anyway. You can go in feeling really bad about something, and walk out feeling on top of the world. Just seeing the student’s enthusiasm, hard work and effort paying off is such a lovely thing. You see the students really giving their all to put on an awesome show for their families and you see how much they’ve progressed since joining the school. The atmosphere is even more charged because of the expectations and hopes the audience has; it seems like such a normal thing…to perform at an event, doesn’t it? Preps for these concerts are even more than what other “normal” schools would go through. The students are given roles according to their ability and are trained to do it well. Karan had to walk in and then go to the fringe of the stage – he was playing a mountain hehe.

Can’t wait for their next event; one of the most exhilarating experiences I have every year.

The theme park for #specialneeds children

Where EVERYONE can play: Father builds theme park for special needs children… and names it after his own precious daughter

By
Daily Mail Reporter

Last updated at 6:37 PM on 25th May 2011

It’s the theme park with a difference. Queues are deliberately kept short, attendance is restricted so there’s not too much noise and it there’s no gaudy advertising promising thrills and adventure.

Yet Morgan’s Wonderland in Texas has proven a huge hit since it opened last year, attracting just the right number of visitors from 16 countries across the globe and from every American state except one.

The difference? Morgan’s Wonderland is aimed squarely at children with disabilities, even if three out of every four of the people who pass through its gates are able bodied.

Fabian Mendoza whoops with delight as he rides a carousel at Morgan's Wonderland. The disabled are allowed into the park for free, while tickets for those with them cost just $10Fabian Mendoza whoops with delight as he rides a carousel at Morgan’s Wonderland. The disabled are allowed into the park for free, while tickets for those with them cost just $10

The carousel has chariots for wheelchairs. Braille games decorate side panels on the jungle gym and table-high sandboxes allow just about any child to build a castle.

Those suffering from autism, orthopaedic problems, the mentally handicapped and children who have seizures are among the most regular visitors.

The park, outside San Antonio, is the first of its kind in the U.S. philanthropist Gordon Hartman named it after Morgan, his 17-year-old daughter, who can’t perform simple maths and struggles to form sentences because of cognitive disabilities.

Despite being designed for those with special needs,
the park is playful enough to be enjoyed by anyone. Its motto is ‘Where Everyone Can Play.’

Refugio Valls enjoys a wheelchair swing, one of 20 attractions at the park. Many are specially designed to allow two wheelchairs to ride side-by-sideRefugio Valls enjoys a wheelchair swing, one of 20 attractions at the park. Many are specially designed to allow two wheelchairs to ride side-by-side

That inclusion was
important to Mr. Hartman, who watched heartbroken as his
daughter tried to join in with three youngsters tossing a ball in a pool
but couldn’t interact. The children were just as unsure how to involve
Morgan, so they simply stopped playing.

The park is one-tenth the size of SeaWorld on the other side of San Antonio. But spending an afternoon at Morgan’s Wonderland — the average guest
stays about 2 1/2 to 3 hours — is deliberately designed not to be an
exhausting, endless trudge from one overcrowded ride to the next.

Reservations are encouraged because of the daily attendance limits, but general manager Dave Force admits, “We’re not going to turn
away a family that’s driven all the way from Arkansas.”

Each guest is given an electronic wristband that allows families
to keep tabs on their group in the park, and scanning the wristbands on
some rides even emails a free photo back home.

Taking Flight, a bronze sculpture of hands and a butterfly is a focal point at the 25-acre San Antonio park which includes live versions of the insects in its Butterfly PlaygroundTaking Flight, a bronze sculpture of hands and a butterfly is a focal point at the 25-acre San Antonio park which includes live versions of the insects in its Butterfly Playground

‘It’s so nice to have a place like this,’ said Tifani Jackson of Austin, Texas, who visited the park with her son Jaylin who has Williams syndrome, a rare genetic disorder that causes learning disabilities and slows development.

As she spoke, Jaylin, 11, tried to pull her back to the off-road adventure ride, where rugged-looking Jeeps that are wheelchair accessible twist and turn through a short track.

Other attractions at the 25-acre, $34 million park include jungle gyms wide enough to fit two wheelchairs side-by-side, and a Sitting Garden, a quiet and meditative place, that’s a favourite among parents with autistic children.

In Sensory Village, an indoor mall of touch-and-hear activities, is a mechanic’s shop with tools mounted to a low table. A light touch
of the drill triggers the crank-like sound of a bolt driving flush into
an engine block. Next door is a pretend supermarket with plastic
lobsters, ears of corn and cans of tuna, and cashiers who always hand
back the right amount of invisible change.

A specially adapted train slowly takes visitors on a mile-long loop around a lake, one of the favourite attractions at the parkA specially adapted train slowly takes visitors on a mile-long loop around a lake, one of the favourite attractions at the park

Most interactive is a
low-lit space with a touch-sensitive floor, giving the illusion of
walking across a pond as the water ripples and colours burst with every
step. White canvases on the walls, meanwhile, transform into butterflies
chasing a shadow any time someone steps in front of the projector.

Sprouting
from the sandboxes are shovels and rakes that can
be operated sitting down from a wheelchair. Another nearby sandbox is
elevated 4 1/2 feet, next to a musical garden of giant xylophones and
chimes. The chariots on the carousel are reserved for wheelchairs, and
many of the horses are fitted with high back cushions for children who
need the support.

When Mr. Hartman first envisioned the park, he could only dream of its success. Now youngsters enjoy such attractions as a regular playground swings and swings for wheelchairs in the same
park.

That’s where nine-year-old Kriste was on a recent afternoon, her
wheelchair rolled onto a platform and being swung back and forth by two
park volunteers.

‘She doesn’t talk,’ said her father, Michael Hernandez. ‘But you can tell she really enjoys it.’

Loved, loved, loved reading this story. Karan has never really been to a theme park. Well, we were in Disneyland, on the one-and-only vacation we’ve been taken on, but he was 2 and eventually missed out on most of the rides because he was crying a lot/was upset. He hadn’t been diagnosed yet so we had no idea why he was upset in the crowds and amidst the noise.

At #manzilbooks at @wildpeeta

First, have a look at the lovely timelapse video that Shruti (aka @shru_) created. Then we’ll get on to the other stuff!

Along with @TwitBookClub, I hosted a event at Wild Peeta OS at DWTC (thanks @wildpeeta!), asking people to donate their unwanted books. Manzil, a centre for challenged individuals, is a small institution doing a lot of work for people with special needs and they’re hoping to host a fundraiser soon where they will sell all the books they have collected.

We’re still collecting books for them, so please get in touch with myself (@DevinaDivecha) or Anastasia (@TDAllonsy) or email me at autism at devinadivecha dot com and we can arrange to pick up the books from you. They were initially hoping to host the event in June, but frankly, it’s mostly been our efforts through Twitter that have seen results, so they don’t have very many books yet to justify hosting an all-day fundraising event, so the date has been pushed back. So I urge you to please help with this…spread the word…that’s all I ask.

A BIG thank you to everyone who showed up (we collected 102 books that day!), and I hope you can pass this info along so the school benefits from whatever contribution people have to make.

To round it off, here’s a look at some pics from the event, where we’re mostly just having a laugh:

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Walk for #Autism, Dubai

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The Walk for Autism took place at Za’abeel Park yesterday, April 30, 2011. Registrations opened at 4pm and the walk was meant to start at 5pm; Mom, Karan and I got there around 4:50pm because we knew that if Karan was made to wait around for too long, he’d get irritated. We registered and got our hands stamped so we could enter the park without paying the customary Dhs5 entry fee.

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Then we faffed around with a few pics and clicks:

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It was a few minutes past 5pm and we figured we should take Karan to the toilet. The perennial problem of disabled toilets being *inside* the male/female enclosure arose, but I walked into the female toilet, cleared my throat and told the women inside that my brother has autism and he cannot go to the toilet alone, so could I bring him in? Everyone said, yes of course and I quickly took him in.

When I came out, the walk had just started!

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The walk is usually quite short. So we took two rounds instead of just the one. There were many people there, families, individuals, companies even. My placard got quite a bit of attention. I was asked about 4-5 times if I would allow a photograph taken of me and Karan together; I said yes. Video cameras also joined in; I was followed for a good few seconds by at least two videographers. Yay, more awareness!

After the walk, the base of the amphitheatre-like area was filled with stalls, and Dubai Drums was putting on a performance.

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Karan was thirsty, natch 🙂

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And we found Karan’s school, Manzil (for whom I might add, we’re collecting books next weekend, to donate to them for their fundraising booksale) had a stand at the walk too!

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When we were leaving, Karan decided to plop down near the fountain and take a good and long look!

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Thanks to all the organizers of the event, to the people who put up stalls and to everyone to attended. A lovely evening.